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October 2, 2018
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There Are Only Two Methods To Live Your Life

When Henry was born, it was obvious that his head was not completely round. In fact, newborns usually have strangely-formed heads after making their way down the birth canal. And loads of infants develop flat head syndrome (plagiocephaly) that may be fixed by carrying a helmet. But Henry’s condition is a bit extra serious than that.

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A CT scan at 9 days outdated confirmed that one of the bones in Henry’s head had fully come together with one other bone in his head. (These bones are known as “sutures”.) This means that one among his comfortable spots had closed too early, whereas he was still within the womb. His head appears considerably normal from the front, however you can positively tell that the back of his head is pointy. The aspect view and high view present that his head is long and boat-shaped.

Henry’s fluffy hair typically hides the odd shape, but you’ll be able to really see it in the bath footage.
The good news is that Henry’s scan showed completely normal brain development and his doctors don’t imagine that he has any increased intracranial pressure. However, as his brain grows more, his head Needs to have the ability to accommodate it. If his head isn’t in a position to develop in a normal, spherical shape, it might cause future intracranial pressure and improvement points.

So that is why our candy little guy will likely be spending his 3 month birthday in the hospital having surgery on his skull.

While I am absolutely terrified at hand over our good baby to an operating room full of surgeons, I am trying my finest to remain positive and focus on this stuff:

1. Thankfully, the neurosurgeon does not really feel that Henry needs essentially the most invasive open-head surgery (cranial vault reconstruction). As a substitute, he can be performing a smaller-scale surgery called the pi process. This surgery should take lower than an hour and will require a 2 or three night time hospital keep.

2. Although the surgical procedure will go away Henry with a scar from ear-to-ear, the scar will eventually be covered up by his beautiful hair. (I was thrilled indian hairstyles for straight hair to seek out out that they will only be shaving a strip of his hair for the process, quite than his total head!)

3. Out of all the varieties of craniosynostosis that exist (yes, that long, scary phrase is the official name of it) Henry has the mildest kind. He has not one of the syndromes that may typically occur with it. He only has one suture that closed (the sagittal one) instead of multiple sutures. The type that Henry has, non-syndromic craniosynostosis, is taken into account to be “an remoted situation in an otherwise normal child”.

4. This condition is fixable and should not affect him severely for the remainder of his life. Roughly 1 in 2,000 babies have this, and docs have been efficiently treating it and fixing it for decades. There are so many more serious illnesses and heart-breaking circumstances that different youngsters and their families need to undergo by means of. We’re really blessed, in that sense, that God gave us two very wholesome youngsters, and we will never take that with no consideration.


Once we first found out about this, certainly one of my first questions was, “What brought about it ” It is hypothesized that non-syndromic craniosynostosis is attributable to fetal head constraint, which means that his head obtained caught in a bizarre position within the uterus and there was not enough room for it to develop in the correct form. Some varieties of craniosynostosis are linked to genetics, however those are usually the extra extreme instances that involve syndromes.

Please send your entire most optimistic thoughts and prayers for our toddler next week. Pray that the surgical procedure goes smoothly, that he does not really feel an excessive amount of ache, that he recovers shortly and simply, and that he does not must deal with any results of this sooner or later (apart from the scar, after all). At the least he is younger sufficient to, hopefully, never even remember the surgical procedure itself.

Also, please pray for Barry, Ryan, and myself, as we try to gather the inner strength to get through this week and next week. I do know that the surgery is for the most effective, but I am scared that I won’t have the ability to go through with it. Please pray that I can put my very own emotions aside for the best interest of our youngster.

The pointy part of H’s head is noticeable right here.
I’ve truthfully had a troublesome time talking about this, up until now. Speaking and writing about it in some way makes it extra real, and it was merely simpler not to consider. indian hairstyles for straight hair It is loopy that we are actually just some days out. In my thoughts, our completely satisfied, easy-going baby is one hundred percent perfect, and the truth that he needs surgery is simply so arduous for me to wrap my head around. I mean, that little man holds my complete heart. The considered him feeling any sort of ache absolutely kills me. I hope that we’re making the appropriate determination and that we are going to be capable to look again and see this as simply one other obstacle.

I suppose what they say is true about life being a series of peaks and valleys. Thanks all in your assist.

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