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There Are Only Two Methods To Dwell Your Life

When Henry was born, it was obvious that his head was not fully round. ombre brown and blonde hair After all, newborns usually have strangely-formed heads after making their approach down the beginning canal. And loads of infants develop flat head syndrome (plagiocephaly) that may be fixed by carrying a helmet. However Henry’s condition is just a little more severe than that.

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A CT scan at 9 days old showed that one of many bones in Henry’s head had completely come along with one other bone in his head. (These bones are known as “sutures”.) Which means that certainly one of his tender spots had closed too early, whereas he was nonetheless within the womb. His head looks somewhat regular from the front, but you’ll be able to positively inform that the again of his head is pointy. The aspect view and high view present that his head is long and boat-formed.

Henry’s fluffy hair typically hides the odd form, but you possibly can actually see it within the bath footage.
The good news is that Henry’s scan showed utterly regular mind growth and his doctors don’t consider that he has any elevated intracranial strain. Nonetheless, as his brain grows extra, his head Wants to have the ability to accommodate it. If his head isn’t capable of develop in a traditional, spherical shape, it could cause future intracranial stress and improvement points.

So that’s the reason our sweet little guy might be spending his 3 month birthday in the hospital having surgical procedure on his skull.

Whereas I am completely terrified handy over our excellent child to an operating room full of surgeons, I am making an attempt my best to remain constructive and concentrate on these items:

1. Thankfully, the neurosurgeon does not feel that Henry wants the most invasive open-head surgical procedure (cranial vault reconstruction). Instead, he might be performing a smaller-scale surgical procedure referred to as the pi procedure. This surgical procedure should take lower than an hour and will require a 2 or 3 evening hospital stay.

2. Although the surgery will leave Henry with a scar from ear-to-ear, the scar will eventually be lined up by his beautiful hair. (I was thrilled to seek out out that they’ll solely be shaving a strip of his hair for the procedure, fairly than his entire head!)

3. Out of the entire types of craniosynostosis that exist (yes, that long, scary phrase is the official title of it) Henry has the mildest form. He has none of the syndromes that can generally occur with it. He only has one suture that closed (the sagittal one) as a substitute of a number of sutures. The type that Henry has, non-syndromic craniosynostosis, is considered to be “an remoted situation in an in any other case normal child”.

4. This situation is fixable and should not have an effect on him severely for the remainder of his life. Approximately 1 in 2,000 infants have this, and docs have been efficiently treating it and fixing it for many years. There are such a lot of more severe illnesses and coronary heart-breaking circumstances that different children and their households must endure through. We’re actually blessed, in that sense, that God gave us two very wholesome children, and we won’t ever take that as a right.


After we first discovered about this, one of my first questions was, “What caused it ” It’s hypothesized that non-syndromic craniosynostosis is attributable to fetal head constraint, that means that his head obtained caught in a weird place within the uterus and there was not sufficient room for it to grow in the right shape. Some sorts of craniosynostosis are linked to genetics, but these are usually the more severe cases that involve syndromes.

Please send your whole most optimistic thoughts and prayers for our little one next week. Pray that the surgical procedure goes easily, that he does not feel an excessive amount of pain, that he recovers shortly and easily, and that he doesn’t need to deal with any effects of this sooner or later (moreover the scar, of course). At the very least he’s younger sufficient to, hopefully, by no means even remember the surgery itself.

Also, please pray for Barry, Ryan, and myself, as we attempt to assemble the internal energy to get by way of this week and next week. I know that the surgical procedure is for one of the best, however I am scared that I won’t be capable to go through with it. Please pray that I can put my very own emotions aside for the perfect curiosity of our child.

The pointy part of H’s head is noticeable right here.
I’ve truthfully had a troublesome time speaking about this, up until now. Speaking and writing about it somehow makes it extra actual, and it was simply easier not to think about. It’s crazy that we at the moment are just some days out. In my thoughts, our comfortable, straightforward-going baby is one hundred p.c perfect, and the fact that he needs surgery is just so arduous for me to wrap my head round. I imply, that little guy holds my whole heart. The considered him feeling any form of pain absolutely kills me. I hope that we are making the appropriate choice and that we’ll be capable of look back and see this as just one other impediment.

I guess what they are saying is true about life being a sequence of peaks and valleys. Thanks all to your help.

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